Dec 18, 2025 · National Organization for Rare Disorders (NORD®) NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best …

NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year. With the respite program, I was able to select a family friend who I trusted, who was already …

What Is the NORD ® Rare Disease Database? The NORD Rare Disease Database is an inclusive and comprehensive list of rare diseases based on information from established rare disease …

NORD is committed to breaking down silos and building bridges so that people living with a rare disease can achieve their best health and well-being. Our belief is that the NORD Rare …

Discover NORD's mission to drive rare disease research, support patients, and advocate for transformative healthcare policies nationwide.

The National Organization for Rare Disorders (NORD) is proud to be the official US partner for Rare Disease Day.

NORD® Rare Disease Scientific Symposium Rare disease breakthroughs don’t happen in isolation—they require collaboration, innovation, and a united commitment to progress.

NORD strongly recommends discussing options to participate in research with your doctor. Research can help identify new diseases, expand our understanding of known diseases, and …

Dec 18, 2025 · Stay informed with the latest rare disease research, breakthrough treatments, and patient stories from NORD's expert team of medical professionals.

NORD Rare Disease Grant Program NORD Research Grants provide seed grants to academic scientists for translational or clinical studies that further development of potential new …