Columnist Connie Chandler is often asked how her parents raised two children with SMA, so she decided to find out for herself ...

Evrysdi can stabilize motor function, improve swallowing ability, ease fatigue, and improve life quality for adults with SMA, ...

Discover the most-read SMA stories of 2025, featuring updates on the gene therapy Zolgensma, next-generation treatments, and ...

SMA children who can't walk have weaker upper leg bones than kids with cerebral palsy who are nonambulatory, a comparative ...

Let's have more conversations about intersecting identities and diverse representation in films and musicals, says columnist.

Columnist Connie Chandler may have limited control over her physical abilities, but she can always strengthen her faith and ...

Columnist Brianna Albers is not good at waiting. One might say she's terrible at it. Living with SMA, though, seems to bring a lot of it.

Leuprorelin acetate, a medicine approved in the U.S. for prostate cancer, may slow the progression of SMA type SBMA, real-world data suggest.

The gene therapy Zolgensma (onasemnogene abeparvovec-xioi) has been newly approved to treat patients with spinal muscular atrophy (SMA) through intravenous (IV) delivery, meaning systemically. However ...

Spinal muscular atrophy (SMA) is an inherited neurodegenerative disorder characterized by progressive muscle weakness. SMA patients do not produce enough of a protein called survival motor neuron (SMN ...

Children with spinal muscular atrophy (SMA) given the gene therapy Zolgensma (onasemnogene abeparvovec-xioi) in infancy are maintaining motor milestones after up to a decade of follow-up, according to ...

In episode 155, host Kevin Schaefer talks with Jasmine Jackson from Vancouver, Washington. Jasmine is a development and marketing manager,… ...